This year, I was officially diagnosed with Chronic Migraines. It's something I'd always suspected, and it's something that my family doctor, lady doctor, and chiropractor always alluded to, but I never really let the reality settle in until I finally went to a neurologist a few months ago. That was after I landed myself in the emergency room.... hooked up to a morphine drip and went through a series of tests to rule out bleeding on the brain or tumors. I guess you could say it was time.
Looking back, I remember having bad headaches in high school, and I remember having tunnel vision and what I would later learn is just one manifestation of an "aura". My migraines were so few and far between that I never really equated them with the term "migraine". I just thought I had a really bad headache. In college, my headaches worsened and became more frequent. I coped with naps. Lots of them. I'd drag myself to class or cheerleading practice before pulling my blinds, curling up in my bed, and encasing my entire body (head to toe) with my comforter. Sleeping always helped.
Once I started teaching, I learned how difficult it can be to function with a room full of little people when you have a migraine. By year three, I was getting at least two migraines a week. I was sent home a few times by my old principal because I the headaches caused me to throw up, and he caught wind of it. Of course, then I had to drive home in the middle of the day with the sun shining directly in my face for thirty minutes. It wasn't really all that helpful. :)
Over the past few years, I have had more and more migraines. This year has been a particularly challenging year. I have had more bad days than good days. Most days, I have a headache. About 3-5 days a week, on average, are consumed by migraines. Before I landed myself in the ER, I had a migraine for ten consecutive days. I could barely even think straight at that point. Every noise grated on my nerves. Even dim light caused me to squint. I looked basically like a zombie around school. Some of my more perceptive co-workers sympathetically patted me on the back and checked in on me periodically. I was planning on just barreling on through until my aura (the flashes of light and tunnel vision I always experienced) changed suddenly. I lost my eyesight in my right eye. Completely. Suddenly. I reached up to touch my eye, and sure enough, it was open. I couldn't see even an outline... not even a haze. Just pitch black. It lasted minutes... just long enough for me to begin to question if I would ever be able to see again. Slowly but surely, I started to see light in the corners, and the black blotchiness slowly evaporated. My sight came back. I had another (even longer) episode after that. It kind of freaked me out to be honest.
After going to the neurologist, I learned that I officially have chronic migraines. So, what is a migraine exactly? It's not the same thing as a headache. Headaches can be caused by stress, sinus problems, etc. A migraine is a chronic neurological disorder characterized by recurrent moderate to severe headaches often in association with a number of autonomic nervous system symptoms. Typically the headache affects one half of the head, is pulsating in
nature, and lasting from 2 to 72 hours. Associated symptoms may include nausea, vomiting, and sensitivity to light, sound, or smell. The pain is generally made worse by physical activity. Up to one-third of people with migraine headaches perceive an aura: a transient visual, sensory, language, or motor disturbance which signals that the headache will soon occur. The auras actually changes the composition of the brain and cause lesions. That's the really fun part.
My neurologist has informed me that this is not something that just goes away. I will probably have them my entire life. I'm on medicine to help me
cope, but it's not a magic bullet. I still have migraines. A lot. Even when I don't have a full-fledged migraine, I will have a headache more often than not. I just
haven't had any ten day marathons lately. Thankfully! :) Modern medicine is kind of an amazing thing. I am slowly turning into the old lady with pill boxes. ;)
I do still
experience a complete loss of vision every now and then. It's always in my right eye...
and it usually signals a coming attack. I've resigned myself to the
fact that this is my new normal. Some days I force myself to squint at
the computer screen with the brightness turned down as low as it can
go. Deadlines are deadlines, and nobody is going to give me a free pass
because I am a chronic migraine sufferer. So, I dig deep, I say a
little prayer, and I try to do what I can. Some days, I just have to
lie down. Some days, I just need to come home and sleep it off. Some days it's really hard to smile and pretend that everything is just peachy when my kiddos start trickling into my room. My new
normal is just a little frustrating. I'd love to feel great every
day. I'd love to be able to go out in the sun or be around my husband
while he watches television without wanting to crawl out of my skin
because it's so incredibly loud and unnerving to hear anything and
everything. I'd love to be able to think without feeling utterly DULL... and speak
without forgetting my words or stumbling over what I am trying to say
because I have bout of aphasia from my migraine. The fact is, this is
the hand I was dealt. This is just the way it is. This is my new normal.
Because I have lost time here and there throughout the year to recuperate, I haven't been that great at responding to emails and keeping up with everything, including this blog. I am on Spring Break this week, so I plan on catching up on any emails I still have sitting in my inbox. I promise I'm not trying to be neglectful or aloof. :) Have a great day, friends. Thanks for being understanding!
Awe, this makes me so sad that you've had to go through this! I've only experienced probably 5 or 6 real migraines in my life, and they were absolutely HORRIBLE! I cannot imagine how you must feel! And a 10 day migraine? You deserve a gold medal for surviving that, girl!! I'm glad you finally have at least a little relief! Hopefully it continues to get better.
ReplyDeleteLove the Barbie pictures, too ;)
Amelia
wherethewildthingslearn
Oh, hun... right there with ya. So scary and frustrating! I am also a Migraine sufferer & (first grade) teacher. My migraines started the same way... late high school/increasing in college. I initially had a doctor pass my migraines off as "stress headaches' until I had a particularly bad bout at school. I lost vision, lost movement in my left arm/slurred speech (like a stroke!) and vomited all over myself trying to drive home when a sub was called for me. I remember crying in the doctor's office because the whole thing was not only painful but alarming! I've learned in the years since then that front-loading myself with a steady diet of regular, nightly sleep is HUGE for me - along with lots and lots of daily hydration and eating regularly (no skipping breakfast). I've also learned that it's never "just" a headache so I shouldn't 'wait & see' if it's going to blossom into a full-blown migraine or count on an aura to give me a hint. I need to take medicine and caffeine at the very first sign of a headache which is sometimes hard to make myself do (or pay attention to) when I'm right in the middle of my school day. I don't presume your migraines are the same as mine, but I hope that now that you have a name for it, you'll be able to find a few "cheats" to lessen the severity/number. Also, as a side note, you may want to get additional blood work done if your doctor didn't already do that. Things like vitamin deficiencies and thyroid levels (!) can make a big impact on the number of migraines you're experiencing. Love and good energy to you. ♥
ReplyDeleteI should also add, for the record, that I no longer attempt driving mid-migraine now that I KNOW what's happening to me. That first time was just me trying to make it home with what I thought was maybe a sudden onset of really bad flu. I had no idea what the progression would be!
DeleteYou. Are. Amazing! Your will to strive and continue to flourish in life, teaching, and even your blog helps me to put things into perspective. Thank you for sharing something that is so personal.
ReplyDeleteBest wishes,
CaseyJane
WigglingScholars
May God bless you!
ReplyDeleteI also suffer from fairly frequent (more so the older I get) migraines but wouldn't be classified as chronic. I also don't have auras but OMG the pain is indescribable. I am completely incapacitated and this year has been really bad. My 2nd graders have seen me suffer and have to be taken home several times this year which has never happened before. I have learned some things over the years that help me often get it under control before it takes over (one is a misunderstanding when I was first diagnosed over 20 years ago-the dr. said "don't wait to take the meds until its a full blown migraine", I thought he said "WAIT until its a full blown migraine"! For 12 years I would wait in tears and terror wondering if it was bad enough yet to take my meds (I know, sounds so stupid now!). I wish you all the best in finding ways to handle your new normal in the best ways possible!
ReplyDeleteUgh! I'm so sorry you have to deal with this!! I'm even more amazed now thinking about all the awesome resources you create for your classroom (and us teachers, too!) and all that you've accomplished in your career. You're incredible in so many ways!!
ReplyDeleteI feel your pain! I used to have migraines EVERY DAY for years!! It made it really hard to teach when my prevented medications didn't want to work. Now, I didn't have auras, but they were bad enough. I hope that you are able to get everything straightened out. For me it was all because of Celiac Disease (goodbye gluten = goodbye migraines). Hopefully, you will find your trigger and migraines don't have to be the new normal. Sometimes its just nice to know that you're not to only one going through it.
ReplyDeleteOMG Samantha - I was the exact same way!! I have a wheat allergy (finally diagnosed after dealing with migraines for about 15 years, and tummy issues since college about 7 years ago). Since I stopped eating wheat/gluten 8 months ago, I haven't had any migraines…unless I get "glutened." Then, the migraines, nausea, etc. all comes back. Good luck Amanda - I hope you get this figured out because I *KNOW* your pain!!
DeleteI can't even imagine! I have only had 3 migraines in my entire life and thought that was bad. I know it would be so difficult to be at school with kids with this.
ReplyDeleteLife With Middle Schoolers
Oh friend I am so sorry to hear this. :( I was diagnosed last year with tension headaches, which are different from migraines, but I understand the feeling of a headache that is so bad you can barely concentrate on anything. It's extremely hard to handle in the classroom and frustrating not to feel "like yourself." I'm sorry you are going through this and will be praying for you. Let me know if there is anything you need - I'm right down the road! :) <3 ya! Get lots of rest this week and make lots of "Amanda time." :)
ReplyDeleteI am so sympathetic with what you are going through! Bless your heart! My 14 year old was diagnosed last year at this time of the year. We have had so many difficult days with her pain and loss of vision. We have finally found the right combination of meds so she has experienced less headaches. I let her read this and she said it made her feel better knowing that an adult has the same problems. She said "Now this lady gets it!" So take care and consider yourself hugged and understood!
ReplyDeleteOh sweet, girl! I suffer from migraines as well...but never have I had one so severe that I've lost my sight. So thankful! Know that you are in my thoughts and prayers...big hugs!
ReplyDeleteGladys
Teaching in High Heels
I'm so sorry you have to go through this! I will keep you in my prayers, Amanda.
ReplyDelete~Chynell (ThePinspiredTeacher)
I am very sympathetic it what you are going through. My daughter woke up with a bad headache that never went away. After seeing many doctors, she was diagnosed with daily persistent headaches and thunder clap migraines. She ended up having a neuro stimulator implanted in her skull as medicines didn't help. She is much better and is a neuro biology major now. Sending hugs your way!
ReplyDeleteThis comment has been removed by the author.
ReplyDeleteI am so sorry, Amanda. Nobody even knows how strong you are until they had to put up with what you do. You are amazing to do all that you do. I will be praying for you that they let up for you. On a fun note, your "Barbie illustrations" were fabulous! :) I just wish they weren't so accurate for you. :(
ReplyDeleteCarolyn
Kindergarten: Holding Hands and Sticking Together
ugh! I too struggle with migraines and meds make me feel so loopy that I try to avoid at all costs. Mine stem from TMJ and I have found relief with monthly accupuncture treatments.
ReplyDelete--Korren
News, Views & Stews
I have these, too...Mine are the same type of yours as far as characteristics but they don't happen as much as yours and I don't lose vision. I am so sorry that you go through this. With mine, I have the aura and my throat and tongue usually go numb which causes me to have slurred speech. I also have Meniere's Disease which is autoimmune--I think Migraines are characterized as auto-immune also. Something like 60% of migraine sufferers end up with Meniere's Disease, so be cautious. I am in remission right now so I don't have as much tinnitus or hearing loss.
ReplyDeleteI hope you get to feeling better!
Jenn
Chartsnchitchat.com
Thank you for posting your story. My migraines are getting worse, I am now able to tell when I am going to get one, but it doesn't help when you are at school. For years, mine would always begin before school ended and then I would spend all night in my little huddle with my headwrap on to block noise and other things. Now I am getting them 1-2 times a month and they are during school! I have been wondering if my hormones trigger them or what is going on. I am so glad that they have not progressed like yours to loss of vision-how scary! Thank you sooo much again for posting about this issue.
ReplyDeleteI'm so sorry you experience this. They're in my family, and I've suffered from them since I was a little girl. I get them far less frequently as an adult, but they always stop me in my tracks. I can't go to work when I have them because I can't stand any light or sound, and I always throw up. My co-worker is currently on Day 20 of a migraine (only the second one of her life) and has missed so much school seeing specialists who are trying to help her. I'm so grateful mine aren't that severe!
ReplyDeleteI too suffer from migraines. It finally got bad enough that I went to the Diamond Headache Clinic in Chicago where I was checked into "headache rehab" for 6 days last summer. This changed my life. There were people there from all over the US but the crazy thing was there were 4 other teachers there the same time I was. One medication that has helped is Migranal nose spray. Its for when you get a migraine. It was worked better than anything I have ever tried. If you have a chance to go to the Diamond Headache Clinic it is worth it. Hope you find some relief!
ReplyDeleteHaving enjoyed reading your blog for a while I thought I'd leave a comment after reading your post. I'm a teacher in the uk...check out my blog...and also suffer from migraines that make me lose my sight and vomit. I've been sent home in the past too. The approach that my doctors took was that my migraines had a food trigger and is had to keep a food diary. As soon as my vision begins to flicker I completely cut out coffee, for a week at least and reduce my sugar intake. It works brilliantly. I also can't go out in bright sun without shades.
ReplyDeleteHave a great spring break xx
Wow! This post really spoke to me - thanks for sharing your struggle. I don't have chronic migraines, but I do get regular migraines a few times a year. I didn't know how other teachers coped with them. I know most of my triggers, so thankful I can avoid them. But one of them is field trips - riding on the bus (even though I rode on one for 12 years every day), the loud noise and just the general stress of a field trip. When I first started getting migraines, I went to the doctor and she said migraines are the most common reason why people miss work. That made me feel a little better when I'm laying on the bathroom floor and can't move. I hope you are able to get some relief and medicine that works for you.
ReplyDeleteOh my gosh! I get migraines (or used to) but never that bad! Forgive me for laughing a bit when you said you freaked out when you couldn't see, um yeah, I'd freak, totally! I can't believe you're going to have to deal with these for life!
ReplyDeleteI HATE migraines! Absolutely hate them. But I've never had one that lasted as long as yours. Luckily, my migraines and headaches have diminished considerably since starting Plexus several months ago. I thank God for that! If you want to try it out, just let me know. I wouldn't wish migraines on my worst enemy. They can make your life miserable.
ReplyDeleteAngela
Southern Fried Teachin’
WOW. I.feel.your.pain. I had them all my life, and suddenly they stopped-but I still worry that they will come back. I had all the symptoms you do. I smile when people say they have a migraine, and they can continue with there day-nope not a migraine- just a headache.
ReplyDeleteJust wanted you to know that I'm thinking of you Amanda and hoping that your migraines get better!
ReplyDelete❀Jodi
Fun In First
Oh, Amanda!
ReplyDeleteI too, suffer from chronic migraine. The used to be intermittant, but now they are chronic. I have one at least 5 days a week, with the longest lasting about 3 weeks - a year ago. I have always had a lot of sick leave built up, but for the last 3 years I have run out. Fortunately, my union has a policy that allows other to donate sick leave and all of my days have been covered. I always thought that they were kind of an invisible disease, but many of my colleagues and especiallly my family can tell when I am suffering without me saying so. My physical symptoms besides the head pounding, shattering sharp pain is increased tmj pain, as well as losing hearing in my right ear, extremely blurred vision to the point that I really cannot see, inability to speak clearly (I can appear drunk), confusion, numbness in my lips, arms, and hands, dizziness, vomiting, and IBS. I have also been told that there is no cure. I have tried many things - abortive meds., preventative meds., NSAIDS, 4 different high blood pressure medicines, chiropratic adjustments, physical therapy, you name it. I have been eating as clean as possible and no longer eat processed foods. Watch out for msg! It is a major trigger and hides as other names. Google "glutamic acid" to find more synonyms for msg. I am now receiving botox injections. They seem to help for the six weeks following the treatment, but the second six weeks are always much worse. I am currently on a short term disabilty due to these monsters. Anyway - I just wanted you to know that you are not alone. www.migraine.com is a wonderful resource. Below is a copy of the most recent email that I received - a new, non-prescription treatment that I am definitely going to try. Best wishes to you.
Warmly,
MJ
I'm so sorry to hear about your headaches. I, too, suffer from this terrible pain. Mine never go away! I've had terrible headaches since my teen years (several decades). :) But, for the last 7 years, the pain is intense and never leaves. Your Barbie pictures were dead on. I describe to doctors exactly what was pictured with both of the first two pictures. It feels like my head is in a vice and is on fire at the same time! Hoping that all of us that suffer find some relief soon. It is very difficult to think straight and deal with all of the things that a classroom teacher does while dealing with this pain. I, too, teach 1st grade. Hoping we all feel better soon!
ReplyDeleteI literally think you are a superhero. It is SO hard to teach when you are not feeling 100%,but especially with migraines. Ohmygosh. You are incredibly looked up to, and a huge inspiration for others.
ReplyDeleteI also have chronic migraines and I'm a teacher. There is nothing worse than trying to pull yourself together for the kids but feeling like you are seriously going to DIE! I've had migraines since high school and sounds like mine are very similar to yours. I've been teaching for 18 years and have spent more days with migraines than without. Yes, throwing up in the trash can and then returning to work with a happy face, ready to sing a new song! About a year ago my Neurologist tried BOTOX. They injected it into my scalp and neck. It is a true miracle! I'm down to one migraine every few months. I've tried every medication possible in the last 18 years. I can't believe that Botox was my answer.
ReplyDelete